Hemophilia did not find place on the priorities of health
authorities. The facilities for its patients were hardly available in
Government or even in private hospitals. Lack of treatment facilities motivated
the hemophiliacs to get organized and set up these on their own. Hemophilia
Society [Delhi] was thus formed as a non-profit organization with a dedicated
team of volunteers including hemophiliacs, during 1987, to provide care to
persons with hemophilia. The Society is registered under the Societies Registration
Act, 1860, Income Tax Act and Foreign Contributions Regulatory Act.
Our Society's objectives are -:
·
Locate undiagnosed persons with Hemophilia
·
Educate, guide and disseminate information about
Hemophilia
·
Provide care at an affordable cost.
In order to achieve the above and provide comprehensive care
to all hemophiliacs under one roof, our Society runs its own Care Centre in the
Lions Hospital premises. It has its own
·
Well equipped laboratory for diagnosis of
hemophilia and related problems.
·
Medical facility with trained medical and paramedical
personnel like hematologist, orthopedic surgeon, laboratory technician,
physiotherapist and psychologist.
·
Society runs a daily OPD
·
More than 1000 Persons with Hemophilia (PWH) are
registered with this Society.
The following facilities are provided FREE to our
Hemophiliac patients.
·
Provides Anti Hemophilic Factor at a cost basis
or even free to poor people.
·
Educates persons with Hemophilia, distributes
educational material free f cost.
·
Supports persons with hemophilia who have
unfortunately contracted HIV.
·
Conducts surgeries in persons with hemophilia
with orthopedic problems.
·
Provides support for weaker sections for their
hospitalization.
·
Organizes Carrier Women and Youth Camps and
events to inculcate self help groups.
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